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RYR-1 Foundation connects people affected by RYR-1-related diseases, offering resources, research updates, and support for families and patients.
Support and resources for RYR-1-related diseases
RYR1.org is the online home of The RYR-1 Foundation, a nonprofit dedicated to supporting people and families impacted by RYR-1-related diseases. Here, you can find up-to-date information about these rare muscle disorders, connect with others facing similar challenges, and access a variety of helpful resources.
The site offers guidance on clinical care, genetic testing, and finding qualified healthcare providers. You’ll also find opportunities to join family conferences, learn about the latest research, and get involved through donations or community events. Whether you’re newly diagnosed or looking for ongoing support, RYR1.org is designed to help you feel informed and supported every step of the way.
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