Rarediseases.org
National Organization for Rare Disorders | NORD
A nonprofit resource for rare disease education, support, advocacy, and research, helping patients, caregivers, and professionals connect and find information.
Support, education, and advocacy for rare diseases
The National Organization for Rare Disorders (NORD) is a nonprofit dedicated to supporting people affected by rare diseases. On this site, you can find educational resources, connect with others in the rare disease community, and access the latest news and research updates. Whether you're a patient, caregiver, or healthcare professional, there are tools and programs to help you navigate the challenges of living with or caring for someone with a rare disorder.
NORD also offers opportunities to get involved, from advocacy efforts to patient assistance programs. The site is designed to be a comprehensive hub for information, support, and community engagement, making it easier for you to find answers, participate in events, and stay informed about policy changes. If you or someone you know is affected by a rare disease, NORD is a welcoming place to learn, connect, and make a difference.
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