Rarediseaseday.org
Rare Disease Day 2025
Rare Disease Day raises global awareness for people affected by rare diseases, sharing stories, resources, and events for patients, families, and carers.
Share stories and support rare disease awareness
Rare Disease Day is a global platform dedicated to raising awareness about rare diseases and advocating for the needs of patients, families, and carers. Here, you can learn more about what rare diseases are, explore personal stories, and discover ways to get involved in spreading awareness.
The website features resources, news, and a calendar of events happening worldwide, making it easy for you to participate or support the cause in your community. Whether you're directly affected by a rare disease or simply want to help, you’ll find inspiring stories and practical tools to make a difference.
You can also share your own experiences, connect with others, and contribute to a growing movement that seeks change and support for the 300 million people living with rare diseases worldwide.
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