Eurordis.org
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EURORDIS connects and supports people with rare diseases in Europe, offering advocacy, resources, and a community for patients and families.
Support and advocacy for rare disease communities
EURORDIS is a platform dedicated to improving the lives of people living with rare diseases across Europe. Here, you can find information, support, and resources tailored for patients, families, and those interested in rare disease advocacy. The site partners with patient organizations and federations to provide a strong, unified voice for the rare disease community.
Whether you're looking to join a network, access educational materials, or get involved in advocacy efforts, EURORDIS makes it easy to connect and collaborate. The site also keeps you updated on events, policy initiatives, and opportunities to participate in shaping the future of rare disease care. If you or someone you know is affected by a rare condition, this is a welcoming space to find support and make a difference together.
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