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Action Duchenne supports those affected by Duchenne muscular dystrophy with resources, advocacy, events, and a supportive community in the UK.
Support and resources for Duchenne families
Action Duchenne is a UK-based organization dedicated to supporting people living with Duchenne muscular dystrophy and their families. On the site, you’ll find a wide range of resources, from information about the condition to support programs for various age groups and opportunities to connect with others.
You can get involved through events, volunteering, fundraising, or simply by accessing their support calendar and joining webinars. The site also offers practical help, details on the DMD registry, and ways to contribute to ongoing advocacy and research efforts.
Whether you’re looking for community, information, or ways to help, Action Duchenne provides a welcoming space for families, supporters, and anyone affected by Duchenne muscular dystrophy.
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