Simonssearchlight.org
Simons Searchlight | Driven by science. United by hope.
Simons Searchlight connects families and researchers to advance scientific understanding and support for rare genetic neurodevelopmental disorders.
Connect with families and researchers for rare disorders
Simons Searchlight is a platform that brings together families affected by rare genetic neurodevelopmental disorders and the scientists researching these conditions. The site serves as a hub for sharing knowledge, resources, and opportunities to participate in research, making it easier for families and researchers to collaborate.
You can learn about the genes studied, find support resources, and join a community dedicated to making scientific breakthroughs. The platform emphasizes data privacy and security, so you can feel confident contributing to research that could lead to better understanding and treatments for these rare conditions.
Whether you’re a family member, advocate, or researcher, Simons Searchlight offers tools and information to help you connect, participate, and stay informed about the latest developments in the field.
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